The Dysautonomia Support Network (DSN) is hosting a SUPERHERO 1-mile Walk & Family Fun Day at Trinity Christian Academy in Addison from 2-4pm on October 20th. PLEASE JOIN US!
Our Story
Watching someone you love enduring chronic illness and pain is devasting. When that person is your child, devastation yields to an intrinsic need to take action. Today, I’m reaching out to ask you to help make an impact for my children and the over 70 million people suffering from dysautonomia worldwide.
In 2017, our daughters, Regan and Delaney, were diagnosed with Elhers-Danlos. Dysautonomia is a broad term used to describe a group of neurological disorders that involve the autonomic nervous system. After almost 12 years of ongoing and debilitating medical issues, endless consulting with and endless amount of doctors, experimenting with a multitude of drugs and medical treatments, we finally had an answer. That relief was immediately met with fear: now what? What does it mean to live with dysautonomia? Can it be successfully treated? How can we improve the quality of our girls’ care and lives? We didn’t have the answers, but we did find a light to help guide us through this new reality: the Dysautonomia Support Network.
The Dysautonomia Support Network seeks to bring hope and progress to individuals living with Dysautonomia and associated disorders. This non-profit organization guides over 12,500 patient members globally through their health management journey, from diagnosis and treatment to advocacy and lifestyle management. Members have access to the resources, support, and education needed to adapt to life with chronic illnesses while being challenged to set new goals despite their physical limitations.
http://bit.ly/TXSuperhero
Register by September 30th to get a DSN Event TShirt. The registration fee is $30.
IMPORTANT NOTE: DURING REGISTRATION MAKE SURE YOU CLICK "JOIN A FUNDRAISER" so you can be on one of our TEAMS!
And if you can't join us, please consider making a donation to this worthy cause. NO AMOUNT IS TOO SMALL!
The success of our events depends upon the generous participation and support of our friends and family. If you would like to donate your time and talent as entertainment during the event, or would like your business to sponsor, please contact: brookeoshea@dysautonomiasupport.org for more information.
100% of funds raised go to providing support, resources, education and advocacy for patients affected by the many forms of Dysautonomia and related conditions such as Connective Tissue Disorders, Mast Cell Activation Disorders, Chiari Malformation and Gastric Motility Disorders.